National PKU News
www.pkunews.org
E-mail: schuett@pkunews.org
Recent Website Updates (1999-2003)
November 2003
New files:
- Making a Low Protein Gingerbread House
- Will Tetrahydrobiopterin Have A Role In PKU Treatment?
- Collaborative Study Shows Why Adults Need to Remain on the PKU Diet
- Feed Me, I'm Yours for Four Years
Updated files:
- National PKU News Index
- Corrections to the Low Protein Food List for PKU (2nd Edition)
- Additions to the Low Protein Food List for PKU (2nd Edition)
- PKU Provider and Service Information
- State Laws and Policies
- Related Links
September 2003
New files:
- 2004 PKU Friends and Family Cruise announcement
- 2004 PKU Friends and Family Cruise information
- 2004 PKU Friends and Family Cruise registration form
July 2003
Updated files:
- Related Links
- PKU Book Order Form
- A Video of Katie, a late-treated adult with PKU, before and after diet treatment
- Troubleshooting Video Playback
May 2003
New files:
April 2003
New files:
- One Family's Positive Experience with the School Lunch Program
- Accommodating Children with Special Dietary Needs in the School Nutrition Programs (PDF format, 59 pages)
- A Video of Katie, a late-treated adult with PKU, before and after diet treatment
March 2003
New files:
- Results from the International Maternal PKU Study
- 2002 Guthrie Scholarship Winners:
John Kelly's Story
Helen Johnson's Story
Mark Brenneman's Story
Brittany Mitchell's Story
Updated files:
- PKU-Related Meetings and Events
- National PKU News Index
- Related Links
- Support Groups and Programs to Assist Families
- PKU Provider and Service Information
- State Laws and Policies
- PKU Literature Listing
February 2003
New files:
- Can a Pill Partially Replace the PKU Diet?
Updated files:
January 2003
New files:- Index to Low Protein Food List for PKU (Second Edition, 2002)
August 2002
Updated files:- Introduction to Drug Products Containing Phenylalanine
- Table of Drug Products Containing Phenylalanine
- State Laws and Policies
- Low Protein Food List for PKU Order Form (Second Edition, 2002)
June 2002
New files:- Low Protein Food List for PKU Order Form (Second Edition, 2002)
- More Tips on Visiting Disney World
- Updated Baby Food Data
- Additions to the Low Protein Food List for PKU
- Related Links
- Support Groups and Programs to Assist Families
- State Laws and Policies
- PKU Provider and Service Information
- National PKU News Index
- National PKU News Order Form
April 2002
Updated files:February 2002
Updated files:January 2002
Updated files:- Table of Drug Products Containing Phenylalanine
- Additions to the Low Protein Food List for PKU
- Links to International Organizations
December 2001
New files:- Ohio Conference Draws People from Thirty States and Seven Other Countries
- Brain Phe and PKU
- Phenylketonuria: The Irish Experience
- ADHD and PKU
- Links to Low Protein Recipes On-Line
- Additions to the Low Protein Food List for PKU
- State Laws and Policies
- Links to International Organizations
- National PKU News Index
- Corrections to the Low Protein Food List for PKU
- Support Groups and Programs to Assist Families
- PKU Literature Listing
- PKU-Related Meetings and Events
October 2001
Updated files:August 2001
Updated files:- Additions to the Low Protein Food List for PKU
- Corrections to the Low Protein Food List for PKU
- State Laws and Policies
- Related Links
- Low Protein Bread Machine Baking Book Order Form
June 2001
New files:- PKU Friends and Family Cruise
Letter explaining the PKU Cruise.
Information about the PKU Cruise.
Registration Form for the PKU Cruise.
- Low Protein Bread Machine Baking Book Order Form
- Low Protein Cookery Book Order Form
- Tips: School, Day Care & Babysitters
- Additions to the Low Protein Food List for PKU
- National PKU News Index
- PKU Literature Listing
- PKU-Related Meetings and Events
April 2001
New files: Updated files:March 2001
New files:- Report on the Latest Scientific Developments in PKU
- U.S. PKU Screening and Treatment Guidelines
- College Bound? Our Experience Dealing with the Diet
- Through The Eyes of Young Adults (Part 2): Living with PKU in the Present
- Teens Living with PKU
- Andrew McLean's story
- Our Trip to Disney World
- My Visit to the U.S.A.
- Tips for Diet Management from PKU Families
- Additions to the Low Protein Food List for PKU
- State Laws and Policies
- Book Order Form
- Changes for the Low Protein Food List for PKU
- PKU-Related Meetings and Events
- Support Groups and Programs to Assist Families
- PKU Provider and Service Information
- PKU Literature Listing
- Related Links
- National PKU News Index
- Tips for Visiting Disney World
September 2000
- Updated the price of Low Protein Cookery for PKU.
- Returned the For Students Writing Papers section to the front page.
July-August 2000
General site changes:- Moved "For Students Writing Papers" off front page and into the About PKU section.
- Moved "PKU Internet Group" off front page and into the PKU Support Information section.
- Made cosmetic changes to many pages.
From a Mother's Heart By Emily Meyers
PKU: A Parent’s Case Report By Kurtis Sauder, M.D.
- 2000 Guthrie Scholarship Winners
- Tips for Visiting Disney World
- Stories of Adults Who Have Returned to the PKU Diet
- Through The Eyes of Young Adults: Growing Up with PKU
- Study Shows Long-Term Beneficial Effects of the PKU Diet, Even for Late-Diagnosed Persons
- Diet Intervention Guidelines for Adults with Untreated PKU
- PKU Support Groups and Programs to Assist Families
- PKU Literature Listing
- PKU-Related Meetings and Events
- PKU Provider and Service Information
- PKU-Related Links
- National PKU News Order Form
- National PKU News Index
- Additions to the Low Protein Food List for PKU
- Low Protein Imitation Cheese
- Baby Food Data
December 1999
- National PKU News Shopping Village
Now you can help National PKU News when you shop for your everyday needs. Simply visit our Shopping Village and choose from more than 70 major online retailers, including Amazon.com, eToys, OfficeMax.com, and JCPenney.com. At least 5% of your purchase will benefit National PKU News and it doesn't cost you - or us - anything extra!
November 1999
- Stories of Adults Who Have Returned to the PKU Diet
- Low Protein Imitation Cheese
- Additions to the Low Protein Food List for PKU
- 1999 Guthrie Scholarship Winners
- John Engstrom's Story (1998 Guthrie Scholarship Winner)
- Related Links
- PKU Internet Group
- National PKU News Index
- Travel and the PKU Diet
- How We Spent Our Summer Holidays By Julia Eckardt from Germany and Julie Kelly from New Mexico
- My Trip to Tasmania and Melbourne By Debbie Colyer, PKU adult from Sydney, Australia
- Looking for Alternate PKU Treatments (PKU News, Fall 1999)
- Gene Repair For Inborn Errors of Metabolism: What is it and when might it become available?
- Update on Phenylase Research
- Cost comparison of low-protein vs. regular food (data is the same, but reformatted table.)
- PKU Support Groups and Programs to Assist Families
- PKU Literature Listing
October 1999
- Diet Intervention Guidelines for Adults with Untreated PKU
Gerber Baby Food Data (replaces Gerber data in Low Protein Food List)
- Blood Monitoring Service
- National PKU News Order Form
- PKU-Related Meetings and Events
- PKU Provider and Service Information