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Special Insert
(Updated Through Volume 18, Number 1, Spring/Summer 2006)To order back issues of National PKU News, use this order form.
ISSUE |
YR |
VOL |
NO |
TITLE |
SS |
1990 |
2 |
1 |
Statistics of subscribers to National PKU News |
SS |
1990 |
2 |
1 |
Newsletter survey |
SS |
1990 |
2 |
1 |
One subscriber's fundraising efforts for National PKU News |
W |
1991 |
2 |
3 |
Purpose of National PKU News |
SS |
1991 |
3 |
1 |
Children's PKU Network: information on beginning of organization and goals |
F |
1991 |
3 |
2 |
Low Protein Food List survey |
F |
1991 |
3 |
2 |
More views of a Grandparent |
F |
1991 |
3 |
2 |
Children's PKU Network helps a remarkable Romanian family |
W |
1992 |
3 |
3 |
National PKU News raffle announcement |
SS |
1992 |
4 |
1 |
Second raffle is a success! |
SS |
1992 |
4 |
1 |
How to help children with PKU in Croatia! |
F |
1992 |
4 |
2 |
PKU "Events"
1991-92: - 14th Annual PKU Parents' Conference in California - A Diversity of Activities in Illinois - Kentucky Conference is a Hit - A Closer Look at Low Protein Specialty Products in Oregon - An Indoor and Outdoor Picnic in New York - Mass. Camp Offers Education and Friendships for Young Women - "PKUisine" in Texas - Field Day in Washington - One "Incredible" Day in California - Friendship Picnic in New York - PKU "Body Walk" in Idaho - First Annual Picnic for Florida PKU Clinic |
F |
1992 |
4 |
2 |
Four More Years for the Maternal PKU Study! |
W |
1993 |
4 |
3 |
Proud Grandparents Tell Their Stories |
SS |
1993 |
5 |
1 |
National PKU News: Origins and Operations |
F |
1993 |
5 |
2 |
PKU "Events"
1992-93; - 15th Annual PKU Parents' Conference in California - A "Pheliteful" Weekend in Baltimore - Texas Parent Workshop - Seattle Group Meets Challenge of Rope's Course - Busy Calendar for Illinois Parent Group - First Inherited Disorders of Protein Metabolism Seminar - Third Northeast Regional Maternal PKU Camp - Holiday Low Protein Dessert Party in New York - New York Clinic Hosts an Indoor "Picnic" |
SS |
1994 |
6 |
1 |
Our Raffle is a Success! - third annual fund raising update |
SS |
1994 |
6 |
1 |
Newsletter Contributors 4/93 to 3/94 |
F |
1994 |
6 |
2 |
PKU "Events"
1993-94: - 16th Annual PKU Parents' Conference in California - First Annual Mary Caite Allen Golf Outing - PKU Parents of Western New York Have a Busy Year - 1, 2, Phe. . .Decide with Me - Maternal PKU Retreat - PKU Parents' Group in Colorado Saves Clinic - Parents Enjoy Picnics and Holiday Parties in Nebraska, New York, Pennsylvania, New Jersey - Programs for Young Adults in Washington - Annual Seminar in Texas - Seventh Annual Maternal PKU Camp in California |
W |
1995 |
6 |
3 |
A follow up discussion with
PKU adults previously interviewed: - John Reyzer, age 22, Middleton, Wisconsin - Eric Brandt, age 25, St. Cloud, Minnesota - Phillip Teasdale, age 36, from Palmyra, Western Australia |
F |
1995 |
7 |
2 |
PKU and Fatherhood: Camping, Bike Trips, Baseball Games, B-Day Parties, Day to Day, and Blood Tests |
F |
1995 |
7 |
2 |
PKU "Events"1994-95: - Friendship Picnic in New York - Jennifer Goes to Camp; Maternal PKU Camp Story - North Carolina Picnics - Texas Group Stays Active - Discovery Day in Illinois - "PKU CORPS" starts in Connecticut - "PKU CORPS" Thrives in Boston - Founders Dinner Honors Dr. Guthrie - Western NY Assoc. Keeps Active - 2Oth Anniversary Conference in Pennsylvania - Holiday Party in Nevada - Picnics for Virginia Families |
W |
1996 |
7 |
3 |
Proud Grandparents Tell Their Stories: Twelve different stories about grandkids |
SS |
1996 |
8 |
1 |
The Robert Guthrie PKU Scholarship Fund |
SS |
1996 |
8 |
1 |
Newsletter Contributors: April 1995 - March 1996 |
F |
1996 |
8 |
2 |
PKU "Events"
1995-96: - Hail to the Chef in Maryland - A World of Difference in Massachusetts - Camp John Marc in Texas, Picnic in Virginia - First South Texas PKU Conference - Family Meeting in Wisconsin - Mary Caite Allen PKU Golf Outing - Picnic in Colorado, North Carolina - Connecticut Family Weekend - Metabolic in Georgia - Science in Seattle - A Flurry of Activities in Texas - Vermont - New Hampshire Family Weekend - All-Stars at Disney World |
W |
1997 |
8 |
3 |
Off-Diet Danger, On-Diet
Promise: Real Life Stories (of young adults with problems off-diet): - Kevin's Story - born in 1956 before newborn screening - Michele's Story - early treated, off-diet later, and return to diet experiences - Jason & Doug's Story - grandparent's story of treatment |
SS |
1997 |
9 |
1 |
Newsletter Contributors: April
1996-March 1997 - 1997 raffle winners and outcome of raffle - The Robert Guthrie PKU Scholarship contributors |
F |
1997 |
9 |
2 |
PKU "Events"
1996-97: - Summer Fun in New York: Eleventh Annual PKU Picnic - Statewide Conference in Texas, Picnic in Colorado - Camp PHEnomenal is Phenomenal - Dallas, TX - North Texas PKU Association Sponsors Many Activities - Picnic in Georgia - Holiday Cookie Exchange in New York - Low Protein Bread Machine Making in Florida - PKU Weekend in Germany, Fun & Learning in Iowa - Activities Galore In New York - Vermont/New Hampshire Family Weekend - Maternal PKU Retreat in Massachusetts - Meeting and Tour in Seattle |
W |
1998 |
9 |
3 |
Catching Up: updates on lives
of 6 young adults previously featured in the Hang In There section: - Miriam Hein (Keller), a German doctor - Scott Merrill, a labor lawyer - Sanna Icks, active in European Society for PKU - Scott VanDeWiel, civil engineer; Gina McMahon, Data Entry Operator - June Dreifuss, delivered normal, healthy baby in August, 1997 |
SS |
1998 |
10 |
1 |
Newsletter contributors April 1, 1997-March 31, 1998 |
F |
1999 |
11 |
2 |
PKU Events 1998-99: - Education Day in Iowa - Activities in Australia - Meeting in New York - Family Day in Connecticut - Picnic in Florida - Maternal PKU Retreat in Canada - Camp PHEver in Texas - Summer Fun in Seattle - Pizza Party in Kansas - Activities in Massachusetts - Activities in Illinois - Party in Michigan - 25th Anniversary Conference in Pennsylvania - Family Gathering in Florida - Activities in Maryland - Picnic in Pennsylvania - Activities in Indiana - Activities in California - Metabolic Camp in Georgia - APC Fund Raiser in California - Information Night in New York |
F |
2000 |
12 |
2 |
PKU Events 1999-2000 (14 family and clinic sponsored events are summarized) |
W |
2001 |
12 |
3 |
Through the Eyes of Young Adults (Part 2): Living with PKU in the Present (6 young adults answer questions about how they deal with PKU and the diet, with advice for parents of younger children) |
F |
2001 |
13 |
2 |
PKU Events from July 2000-June
2001: - Adult PKU Days in Massachusetts - Picnic in North Carolina - Back to School in Connecticut - Illinois Happenings - PKU Teen/Adult Event in Australia - Picnic in New York - Field of Dreams in Pennsylvania - Picnic in Virginia - Conference in New England - Kindred Spirits 2000 in Canada - Picnic in Pennsylvania - Activities in Washington |
F |
2002 |
14 |
2 |
PKU Events 2001-2002: - Spring Sweet Swap in NY - Apple Picking & Conference in New England - Walk for Research in NJ - Activities in MO - Meeting in FL - National PKU Awareness Day & Other Activities in Australia - PKU Parents Conference & Family Day in CA - Low Protein Cooking Workshops in CA - Apple Cooking in NJ - Summer Camp in IL - A Diversity of Events in IL - Valentine's Party in NJ - Celebrating Autumn in IN - Family Week-end in NH - Picnic in NM - Camp in MD |
W |
2003 |
14 |
3 |
Three Adults Successfully Restart the PKU Diet (stories of 3 adults who discontinued the diet as children, then returned for a variety of reasons) |
| F | 2004 | 16 | 2 |
Events: - Spring Fund-Raiser in CA - Annual Picnic in KS - PKU Awareness Day in Australia - Spring Fling in MD - Cooking Class in FL - Events in IL - Annual Winter Party in MN - Family Picnic in NC - PKU Family Camp in OR - Metabolic Day in PA - Cooking School in GA - Walk for PKU Research in NJ - Picnic in WI - Fun in AZ - Cooking Workshop in NY - New from St. Louis, MO - PKU Activities in WA |
| W | 2005 | 16 | 3 |
If He’s Special, What am I? Siblings of Children with Chronic Health Needs. Improving PKU Diet Compliance (includes table of Recommendations for Improving Diet Compliance). |
| SS | 2005 | 17 | 1 | Newsletter Contributors March 16, 2004-March 15, 2005 |
| F | 2005 | 17 | 2 |
Events: - Annual Picnic in MO - Culinary Workshop in NJ - Metabolic Camp in GA - Picnic in IA - PKU Golf Tournament in CT - Spring Social in TX - Summer Camp in OH - Conference in NJ - Workshop and Cooking in Canada - PKU Family Camp in OR - Camp PHEver in TX - Golf Tournament in MN - Potluck Dinner in MO - Young Adult Dinner in FL - Events in WA - Teen and Adult Luncheon in Australia |
| W | 2006 | 17 | 3 | PKU Medical Foods 101 (includes table of all available products in US) |
| SS | 2006 | 18 | 1 | Newsletter Contributors March 16, 2005-March 15, 2006 |