National PKU News
www.pkunews.org

PKU Legislation & Policies

• Unifying the Community to Advocate for Federal Legislation-Insurance Coverage

• Lobbying Guidelines for PKU-Related Insurance Benefits

• Complete Insurance Coverage in Newborn Screening

• Maryland House Bill 509

• Sample Letter in Support of Legislation (used in Florida)

• Cost Comparison of Low-protein vs. Regular Food

• State Laws and Policies ^Updated

• Reimbursement for Medical Foods for Inborn Errors of Metabolism