PKU Support Information, PKU Provider and Service Information

This is a list of various resources mentioned in National PKU News. Note: Prices are approximate and may be out of date; they are not updated each time the list is updated. Please check with distributor for current price.

Internet Groups

Internet Listserv Group (for parents, affected persons and professionals)
To join, send an e-mail request to: listserv@listserv.cc.emory.edu In the body of your email, include: SUBSCRIBE PKU-SUPPORT-L [first name] [last name].

Internet Adult/Teen Listserv Group (for affected persons and their spouses/significant others)
To join, send an e-mail request to: pkuadult@aol.com . Include your name, age, city/state, country.

Internet Late-Treated Adults Listserv Group (for families and affected persons diagnosed with PKU after early infancy)
To join, send an e-mail request to: Coalition4pkuad@aol.com . Include your name, address, city, state, zip, country, age of late-daignosed family member and age of diagnosis. You will then be sent an invitation to join the group.

Sources for Low Protein Foods and Items Useful for PKU Diet Management

Medical foods (formulas)
Medical foods (formulas) for treatment of PKU are available from the following US companies:

Abbott Nutrition
625 Cleveland Ave.
Columbus, OH 43215-1724
Te1: 1-800-227-5767
Web site: www.abbottnutrition.com

Applied Nutrition Corp.
10 Saddle Rd.
Cedar Knolls, NJ 07927
Te1: 1-800-605-0410 or 973-734-0023
Web site: www.medicalfood.com

Cambrooke Foods
4 Copeland Dr.
Ayer, MA 01432
Tel: 1-866-456-9776 or 508-782-2300
Web site: www.cambrookefoods.com

Mead Johnson Nutrition
2400 W. Lloyd Expressway
Evansville, IN 47721-0001
Te1: 1-800-222.9123
Web site: www.mjn.com

Nutricia North America
P.O. Box 117
Gaithersburg, MD 20884
Tel: 1-800-365-7354 or 301-795-2300
Web site: www.shsna.com

Solace Nutrition
One Research Court, Suite 450
Rockville, MD 20850
Tel: 1-888-876-5223
Web site: www.solacenutrition.com

Vitaflo USA
211 N. Union St. Suite 100
Alexandria, VA 22314
Tel: 1-888-VITAFLO (848-23560
Web site: www.vitaflousa.com

Low protein products and ingredients useful for PKU diet management

Applied Nutrition Corp.
10 Saddle Rd.
Cedar Knolls, NJ 07927
Te1: 1-800-605-0410 or 973-734-0023
Web site: www.medica1food.com

Bickford Flavors
19007 St. Clair Ave.
Cleveland, OH 44117
Tel: (800) 283-8322 or (216) 531-6006
Web site: www.bickfordflavors.com/

Cambrooke Foods
4 Copeland Dr.
Ayer, MA 01432
Tel: 1-866-456-9776 or 508-782-2300
Web site: www.cambrookefoods.com

CanBrands Specialty Foods
PO Box 227
Gormley, Ontario, Canada L0H 1G0
Tel: 905-888-5008
Web site: www.canbrands.ca

Dietary Specialties, Inc.
8 South Commons Rd.
Waterburg, CT 06704
Tel: 1-888-640-2800
Web site: www.dietspec.com/

Ener-G Foods, Inc.
P. O. Box 84487
5960 First Ave. South
Seattle, WA 98124-5787
Tel: 1-800-331-5222
Web site: www.ener-g.com

Glutino Food Group
2055 Boulevard Dagenais Ouest
Laval, Quebec, Canada H7L 5V1
Te1: 1-800-363-DIET (3438)
Web site: www.glutino.com

HR, Glutino.com
1118 Berlier St.
Laval, Quebec, Canada H7L 3R9
Tel: 1-800-363-DIET (3438) or 450-629-7689
Web site: www.glutino.com

Lil’s Dietary
2738 W. 111 St.
Chicago, IL 60655
Tel: 773-239-0355
FAX: 773-239-0357
Web site: www.lilsdietary.com

Med-Diet, Inc.
3600 Holly Lane Suite 80
Plymouth, MN 55447
Tel: 1-800-MEDDIET (633-3438)
Web site: www.med-diet.com

Nutricia North America
P.O. Box 117 Gaithersburg, MD 20884 Tel: 1-800-365-7354 or 301-795-2300 Web site: www.shsna.com

PKU Perspectives
472 South 640 West
Pleasant Grove, UT 84062
Tel: 1-866-PKU-FOOD (758-3663)
Web site: www.pkuperspectives.com

Rich’s (Richwhip Topping/Coffee Rich)
127 Airport Rd.
St. Simons Island, GA 31522
Tel: 888-732-7251
Web site: www.richwhip.com

Specialty Food Shop
555 University Ave.
Toronto, Ontario, Canada M5G 1X8
Tel: 416-977-4360
Web site: www.specialtyfoodshop.com

Taste Connections
Tel: 310-371-8861
Web site: www.tasteconnections.com

Uncle Henry’s Handmade Pretzels
PO Box 219
Bowmansville, PA 17507
Tel: 1-800-683-8375 or 717-445-4690
Web site: www.unclehenrys.com

Resources for PKU management by Virginia E. Schuett

Low Protein Food List for PKU, Third Edition, 2010. This invaluable resource includes phe, protein and calorie information for more than 6,000 foods. Available in both printed and screen version (the latter suitable for PC or Mac computers).
To order: Go to the link on the home page of this website by clicking on the cover graphic for the food list.

Apples to Zucchini: A Collection of Favorite Low Protein Recipes by Virginia Schuett and Dorothy Corry, 2005. This book includes more than 500 recipes for the PKU diet, with special emphasis on fresh fruits and vegetables and recipes suitable for the entire family. Very few recipes include special low protein ingredients. The focus is on a diversity of healthy foods and easily obtainable ingredients.
To order: Call Nutricia North America, distributor, for a current price: 1-800-365-7354 or 301-795-230 or go to mypkudiet.com. Major credit cards are accepted.

Low Protein Cookery for PKU by Virginia E. Schuett, The University of Wisconsin Press, third edition 1997. This "classic" book includes more than 450 recipes for the PKU diet, plus many practical tips for managing the diet and is as useful today as it was in 1989 when it was first published. Order from Amazon.com or from The University of Chicago Distribution Center.
To order: Call The University of Chicago Distribution Center, the distributor, for a current price: 1-800-621-2736. Major credit cards are accepted. Or order from Amazon.com, Borders.com, BarnesandNoble.com or Overstock.com.

You and PKU by Virginia E. Schuett and Margaret Taylor, National PKU News, second edition 1998. This delightfully illustrated "classic" children’s book is geared for children 3 to 6 years of age.
To order: Call Nutricia North America, distributor, for a current price: 1-800-365-7354 or 301-795-2300 or go to mypkudiet.com. Major credit cards are accepted.

National PKU News, Virginia E. Schuett, director and editor, 1989-present. This highly informative 16-page newsletter is published three times yearly by a non-profit organization of the same name.
To subscribe: Go to the link on the homepage of this website by clicking on the cover graphic for the newsletter, or e-mail Virginia Schuett: schuett@pkunews.org.